Our Story

We’ve never fundraised before and although we try to be charitable people in general - we realised today that that isn’t enough. It’s time to do something, anything to contribute toward beating Cystic Fibrosis for good.



Silvan - tiny baby edition

I didn’t know what CF was until Silvan was born in 2002. He is the oldest of our nephews and when we found out Ina was pregnant we were all beyond excited! She was the first to realize something was wrong and her clever doctor brain and maternal instincts must have really kicked in when she started spotting the symptoms in her newborn baby boy despite the fact that CF cases were pretty much unheard of in our hometown.

Although we had no prior knowledge of CF, when Silvan was a baby we learned to incorporate his treatments into our lives and it soon became the norm. The aerosol treatments, physio, his vest sessions to help clear his lungs as well as dozens of pancreatic enzymes, vitamins and supplements Silvan needs to take with every meal in order to digest food and retain a healthy weight.

Silvan is 11 now and although his normal is so different to what you’d expect of a budding teen - he still amazes us every day with his kind spirit, wisdom beyond his years and infectious sense of humour. He is the best thing to ever happen to our family and we refuse to let CF hold his little body hostage and affect his future in such a big way.

Silvan - handsome 11 year old edition

We need to find a cure - for Silvan and for all the other thousands of people living with CF. The best we can do is try and contribute toward the war the CF Trust is waging against this horrid disease and pray that they find a cure sooner rather than later.  

This year has to be the year we take action and do something - this is why Noni, Georgie and I have decided to put our efforts into raising money for the CF Trust. Over the next 10 months we’re going to run, climb, bake, skydive, swim and anything else we can think of if it helps bring us closer to our £1,000 target. I'll even chop my hair off if it'll help!

Fundraising is new to all three of us so we’ll probably stumble across the way but bear with us, follow our journey and most importantly - give generously and support our efforts of trying to kick CF to the curb! Use our justgiving page for donations - they’ll go straight to the CF Trust and subscribe to our blog for progress updates on our monthly challenges. Stay tuned, it's gonna be an exciting 10 months! :)

Much love,

Maria, Noni and Georgie